Developing a Patient Survey to Measure Quality of Care for Rheumatoid Arthritis (RA)
Scientific Science Title:
Development of a Patient-Centered Rheumatoid Arthritis (RA) Quality of Care Survey
Principal Investigator:
Claire Barber, MD, PhD, FRCPC
Assistant Professor, Division of Rheumatology
Department of Medicine, Cumming School of Medicine, University of Calgary
Start Date
2020/10
End Date
2021/10
Why do this research?
We created a survey for RA patients that measures quality of arthritis care. The survey looks at whether patients have received counselling for smoking cessation, exercise, and lifestyle habits. Existing surveys for RA patients often do not include these topics. It is also difficult to get this information through other methods such as patient charts or medical records. By including these topics in our survey, we can assess and improve quality of arthritis care from the patient perspective.
What will be done?
We invite RA patients to test our survey online and participate in an online interview where you share your feedback. This feedback will help us improve the survey.
Then we will test the survey by comparing survey responses to patient charts and/or electronic medical records to see how accurate our survey is. The results of this step will help us identify any areas for improvement.
You may be eligible if you:
- Are 18 years of age or older
- Have access to a device with internet
Who is involved?
Rheumatologists, nurses, allied health providers, and researchers with expertise in rheumatology, health services, qualitative methods, and survey design.
Co-investigators:
Cheryl Barnabe, MD, MSc, FRCPC
Glen Hazlewood, MD, PhD, FRCPC
Joanne Homik, MD, MSc, FRCPC
Diane Lacaille, MD, MHSc, FRCPC
Linda Li, BSc PT, MSc, PhD, FCAHS
Paul MacMullan, MD, MB BCh
Deborah Marshall, PhD
Dianne Mosher, MD
James Rankin, PhD, ACNP
Karen Then, PhD, ACNP
Karen Tsui, Arthritis Research Canada, Arthritis Patient Advisory Board
Kelly English, Arthritis Research Canada, Arthritis Patient Advisory Board
How do people get involved?
Contact Kiran Dhiman, Research Coordinator
Email: kdhiman@ucalgary.ca
Funding Agency:
This project is funded by the University of Calgary’s Cumming School of Medicine, Department of Medicine Clinical Analytics Award.
