Developing a Patient Survey to Measure Quality of Care for Rheumatoid Arthritis

 

Scientific Study Title:

Development of a Patient-Centered Rheumatoid Arthritis Quality of Care Survey

 

 

Study Start Date

2020

End Date

2022

 

Why Did We Do This Research?

Monitoring the quality of care people with Rheumatoid Arthritis receive is important yet challenging. To address this challenge, we created the Rheumatoid Arthritis Quality of Care Survey (RAQCS). The goal of this survey was to have a standardized way to measure the quality of care based on a set of quality measures. The measures used are outlined in a national quality improvement framework for rheumatoid arthritis. This study aimed to create and test a tool that could help health care providers understand how well they are meeting their patients’ needs according to these measures.

 

What Did We Do?

The creation of the Rheumatoid Arthritis Quality of Care Survey involved three steps:

  1. A team of health care providers, researchers, and rheumatoid arthritis patients developed a survey. The survey was based on 21 quality measures, that covered important aspects of rheumatoid arthritis care, such as providing counselling for smoking cessation, exercise, and lifestyle habits.
  2. To ensure the questions were clear and appropriate, interviews were held with rheumatoid arthritis patients. Based on their feedback, the survey was revised.
  3. The survey was given to a group of rheumatoid arthritis patients who were part of a long-term study group called Rheum4U. The responses from the survey were compared with information from the patients’ medical records to see how well the survey’s findings matched real-world data.

 

What Did We Find?

  • 53 people completed the Rheumatoid Arthritis Quality of Care Survey.
  • For 13 out of 20 quality measures, the survey showed that 70% or more of the care provided met the expected standards.
  • There were areas identified where care could be improved, such as:
    • in recording patients’ body mass index (BMI),
    • smoking status,
    • discussing physical activity,
    • managing other health conditions alongside rheumatoid arthritis, and
    • assessing the severity of patients’ rheumatoid arthritis symptoms.

When comparing the survey results with the medical records, there was a high level of agreement for nine out of the 20 measures.

 

Research Team

 
Principal Investigator:

Claire Barber, MD, PhD, FRCPC; Research Scientist, Arthritis Research Canada (University of Calgary)

Co-investigators:

Cheryl Barnabe, MD, MSc, FRCPC; Research Scientist, Arthritis Research Canada (University of Calgary)
Glen Hazlewood, MD, PhD, FRCPC; Research Scientist, Arthritis Research Canada (University of Calgary)
Joanne Homik, MD, MSc, FRCPC
Diane Lacaille, MD, MHSc, FRCPC; Scientific Director, Arthritis Research Canada (University of British Columbia)
Linda Li, BSc PT, MSc, PhD, FCAHS; Senior Research Scientist, Arthritis Research Canada (University of British Columbia)
Paul MacMullan, MD, MB BCh
Deborah Marshall, PhD; Senior Research Scientist, Arthritis Research Canada (University of Calgary)
Dianne Mosher, MD
James Rankin, PhD, ACNP
Karen Then, PhD, ACNP
Karen Tsui, Arthritis Research Canada, Arthritis Patient Advisory Board
Kelly English, Arthritis Research Canada, Arthritis Patient Advisory Board

Additional Study Team Members:

Sarah Sloss
Kiran Dhiman
Saania Zafar
Nicole Hartfeld
Marc Hall

 

Funding Agency:

This project was funded by the University of Calgary’s Cumming School of Medicine, Department of Medicine Clinical Analytics Award.

 

Related Publication:

Sloss S, Dhiman K, Zafar S, Hartfeld NM, Lacaille D, Then KL, Li LC, Barnabe C, Hazlewood GS, Rankin JA, Hall M, Marshall DA, English K, Tsui K, MacMullan P, Homik  J, Mosher D, Barber CEH. (2022). Development and testing of the rheumatoid arthritis quality of care survey. Seminars in arthritis and rheumatism, 54, 152002.