Participate in Research
Research study participants play a crucial role in arthritis research, and much of the research completed at Arthritis Research Canada is made possible by the generous contribution of time by people like you. There are many opportunities for you to become involved; however, some patients are hesitant because they believe that all research studies are invasive. The truth is that some studies can be as simple as taking a survey, testing an interactive website or having a knee exam. And remember, your privacy and confidentiality are always protected.
Opportunities for you to get involved:
Experiences and Satisfaction with Care in Canadian Adults with Rheumatoid Arthritis
Virtual care is becoming an important part of managing rheumatoid arthritis in Canada, particularly for those with limited access to rheumatologists. To help improve care, we’re conducting a 15-minute survey to better understand the virtual and in-person care preferences of Canadian adults living with rheumatoid arthritis.
FlexCAre: Flexible Care Delivery Model for Arthritis
The way that patients receive healthcare for their inflammatory arthritis (IA) is outdated and doesn’t meet their needs. We’re recruiting for a research study that aims to find out what is important to you when it comes to follow-up and continued care delivery of your inflammatory rheumatic disease.
Investigating the Mechanisms of Intramuscular Collagen Accumulation in Individuals with Knee Osteoarthritis
New parents living with autoimmune arthritis face added challenges. We’re recruiting participants for a research study that seeks to understand the impact of these challenges on the mental health of parents with autoimmune rheumatic diseases and to identify ways to support them.
La parentalité avec de l’arthrite: comprendre comment la santé mentale est affectée et identifier des besoins de support
Les personnes atteintes d’arthrite auto-immune font face à des défis supplémentaires en tant que nouveaux parents, ce qui peut avoir un impact négatif sur leur santé mentale. Notre étude vise à mieux comprendre la santé mentale des parents atteints d’arthrite auto-immune et à identifier des besoins de support.
Early Parenthood with Arthritis: Understanding How Mental Health is Affected and Identifying Support Needs
New parents living with autoimmune arthritis face added challenges. We’re recruiting participants for a research study that seeks to understand the impact of these challenges on the mental health of parents with autoimmune rheumatic diseases and to identify ways to support them.
Central Nervous System Pain Mechanism and Excitability Changes in Symptomatic Knee Osteoarthritis
Increasing evidence suggests that symptomatic knee osteoarthritis involves changes in how the nervous system transmits and processes information from the knee joint. We’re recruiting for a research study that aims to use different tools to assess differences in nervous system sensitivity between individuals with and without symptomatic knee osteoarthritis.
VIVA: Virtual Intervention for Vertebral Fractures
VIVA aims to determine the feasibility of a study evaluating whether people with spine fractures would benefit from education and training on pain management, nutrition, safe movement, and exercise. Vertebral fractures due to osteoporosis can cause pain and disability. Most people will be offered medications for osteoporosis and for pain, if applicable, but there is no standard rehabilitation for people with spine fractures. The VIVA study tests whether enough participants will join and complete a study examining the effectiveness of an intervention involving pain management, nutrition, safe movement, and exercise, and to understand their experience with the VIVA intervention.
SIRIUS-LN: a Phase III Clinical Trial for a New Biologic in Lupus Nephritis
This clinical trial aims to look at how well ianalumab works in participants with renal manifestations in systemic lupus erythematosus, also called lupus nephritis. This study will demonstrate the clinical efficacy of ianalumab administered as a subcutaneous injection monthly or quarterly, compared to matching subcutaneous placebo monthly in adolescent and adult participants with systemic lupus erythematosus, who are on standard-of-care treatment.
SIRIUS-SLE 1: a Phase III Clinical Trial for a New Biologic in Systemic Lupus Erythematosus
This clinical trial aims to look at how well ianalumab works in participants with systemic lupus erythematosus. This study will demonstrate the clinical efficacy of ianalumab administered as a subcutaneous injection monthly or quarterly, compared to matching subcutaneous placebo monthly in adolescent and adult participants with systemic lupus erythematosus, who are on standard-of-care treatment.
INTACT: RetINal Toxicity And HydroxyChloroquine Therapy Study
The INTACT study aims to define the risk of retinal toxicity in patients with rheumatoid arthritis or systemic lupus erythematosus who have been using hydroxychloroquine (also known as Plaquenil) for five or more years. This risk is not well-defined in the literature – it currently stands between 0.5-5%. Participants will receive state-of-the-art retinal toxicity monitoring over five years, at no additional charge to them.
The SOAR (Stop OsteoARthritis) Clinical Trial
Many young Canadians who hurt their knees playing sports are at risk of developing osteoarthritis (OA) at a young age. Osteoarthritis can cause pain and disability, making it hard to work, take care of family, and enjoy life. The Stop OsteoARthritis (SOAR) program offers a new way to help prevent OA through education and exercise. By testing how well this program works compared to usual care, the study aims to find a way to keep people’s knees healthy and reduce the impact of OA on their lives and the healthcare system.
