Rheumatoid Arthritis Care for Diverse Populations in Canada – Supporting Changes to Better Reflect Realities
Scientific Study Title:
Cheryl Barnabe – MD, MSc, FRCPC, Senior Scientist, Arthritis Research Canada
Associate Professor, Division of Rheumatology, Department of Medicine and Department of Community Health Sciences, Cumming School of Medicine, University of Calgary
Diane Lacaille, MD, MHSc, FRCPC
Scientific Director, Arthritis Research Canada
Mary Pack Chair in Rheumatology Research
Professor, Division of Rheumatology, Associate Head of Academic Affairs, Department of Medicine, University of British Columbia
Glen Hazlewood, MD, PhD, FRCPC,
Assistant Professor, Division of Rheumatology, Department of Medicine, Cumming School of Medicine, University of Calgary
Research Scientist, Arthritis Research Canada
Dr. Aurore Fifi-Mah
Clinical Associate Professor- Division of Rheumatology, Department of Medicine, Cumming School of Medicine, University of Calgary
Dr. Nicole Johnson
Clinical Associate Professor- Department of Paediatrics, Cumming School of Medicine, University of Calgary, Alberta Children’s Hospital
Dr. Brett Thombs, Professor- McGill University
Lead- Scleroderma Patient-centered Intervention Network (SPIN)
Dr. Richard Henry, PostDoctoral Fellow
Scleroderma Patient-centered Intervention Network (SPIN)
Cheryl Koehn, President, Arthritis Consumer Experts (ACE)
Therese Lane, Michael Kuluva, Canadian Arthritis Patient Alliance (CAPA)
Kelly English, Arthritis Patient Advisory Board (APAB)
Nejat Hassen, Masters student, The University of British Columbia (UBC)
Megan Thomas, PhD student, The University of British Columbia (UBC)
Why do this research?
Some healthcare providers and researchers have a limited understanding of the barriers to care that exist for people who are members of populations that experience inequities. We need to determine which approaches in rheumatology care are desired, effective and improve outcomes for all people with Rheumatoid Arthritis (RA) and put them into practice. Over the past two years, we have explored the experiences of RA care of various populations: persons from rural and remote areas, those who are of Indigenous ethnicity, persons who are elderly with frailty, population groups who have immigrated to Canada, those who are homeless or have low income, and who are women pursuing motherhood. In speaking with people from these diverse communities and their healthcare providers, we developed guiding principles for RA treatment recommendations reflective of their unique circumstances. We now seek to expand this work further.
What will be done?
We will gather information to understand the RA care experience for Black Canadians and Canadians with diverse sexual orientation, gender identity and expression. That information will inform how RA treatment recommendations are put into practice, so that the approaches taken reflect their needs and realities. We will share the information we gather by developing materials and an online medical education program for arthritis care providers in Canada. Our evaluation will include the impact of this work on providers’ awareness and any changes they make in their approach to providing arthritis care.
Who is involved?
The research team includes researchers with expertise in equity and guideline development, rheumatologists and patients representing Black Canadians and persons with diversity in sexual orientation, gender identity and expression. We are looking to recruit up to 15 patients from each of these 2 population groups who have RA, and up to 15 rheumatology care providers who have experience in delivering care to persons from these populations. Once we have designed the continuing medical education program, we will advertise it to rheumatology care providers throughout Canada to take.
Canadian Initiative for Outcomes in Arthritis Care (CIORA)
For further information on participating in this study please contact us at firstname.lastname@example.org
This study has been approved by the University of Calgary Conjoint Health Research Ethics Board (REB19-0695).