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Understanding the Economic Impact of Systemic Autoimmune Rheumatic Diseases

 

SARDs-SurveySystemic autoimmune rheumatic diseases, or SARDs, are a group of rare inflammatory disorders including:

  • Systemic lupus erythematosus (lupus)
  • Systemic sclerosis (scleroderma)
  • Sjogren’s syndrome
  • Polymyositis
  • Dermatomyositis
  • Systemic vasculitis

 

SARDs usually strike in early adulthood while individuals are completing their education, establishing careers, and starting families. Although treatments are available, SARDs still limit participation in paid work and other meaningful activities. However, the full economic impact these disabling disorders have on patients, their families, and society is underappreciated.

 

To better understand the costs and limitations resulting from SARDs, researchers from UBC and Arthritis Research Canada are asking people who have been diagnosed with a SARD about the activities they take part in (including paid work, school, housework, child/elder care, and volunteering), and out-of-pocket costs they face.

 

Participants will be asked to complete a short survey, either on paper or online. This study does not involve any visits. To help ensure a wide range of people with SARDs are included, we are mailing survey invitations to a random sample of SARD patients living across BC. If you receive an invitation package, please consider helping us with this research!

 

Contact:

Natalie McCormick: sardsurvey@arthritisresearch.ca

604.207.4045 or toll-free at 1.844.307.0400.

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