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The Arthritis Newsletter

Fall 2015

ROAR 2015 – Osteoarthritis and You: What You Can Do NOW

By Wendy Lum

 

What do patients diagnosed with a chronic disease like arthritis need?  They need reputable information about their disease and they need hope for the
future. The Arthritis Patient Advisory Board (APAB) of Arthritis Research Canada (ARC) accomplishes these two goals.  APAB is a group of 21 arthritis
patient volunteers who are arthritis advocates.

 

They are the bridge between patients and ARC scientists transforming the lives of arthritis patients through research engagement.

 

APAB patients are involved individually and collectively in a number of arthritis initiatives. They bring the patient voice to research from the beginning of
a research project idea to the dissemination of results.  This research continuum is called Knowledge Translation and  Exchange (KTE).  The underlying
concept is to include all stakeholder voices (patients, researchers, health care providers, etc.) in generating research ideas. It involves designing,
undertaking, analyzing, interpreting, sharing and supporting the use of research findings in clinical care.  An increasingly important requirement of
research grant applications is to include the patient voice throughout as many of these phases as appropriate. APAB and the research community believe
that including the patient voice in research strengthens its outcomes.

 

Two of APAB’s proud accomplishments are the quarterly newsletter and ROAR -­ an annual or bi­annual interactive public educational forum between
ARC researchers, patients and the arthritis community.

 

What is the history behind ROAR?  The Roundtable on Arthritis Research (ROAR) was started in 2006 by ARC’s Consumer Advisory Board (the
previous name of APAB).  The purpose was to generate a two­way dialogue between ARC scientists, arthritis patients and the community at large.  In
2005, ARC received the CIHR (Canadian Institute of Health Research) grant to go forward with ROAR.  The pioneer members of the 2006 ROAR
Steering Committee were: Colleen Mahoney, Dr. Allen Lehman, Otto Kamensek, Dr. Marc White, Susan Lowe, Nancy Roper, Veronica Carroll and
Christine Till.

 

In the beginning, in order to reach audiences who could not attend ROAR personally, Shaw Cable access was used.  This was ROAR’s first broadcast and
was initiated by Otto Kamensek.

 

Here is what Otto has to say about his vision:

 

“My intent for the video­taping of the event was to create a record of the event and the knowledge shared.  The greater goal was to use local
community TV as an extension of KTE.  I  fell far short of that greater goal and I thought that might happen.  I wanted to have the ROAR event shown
to as many community TV cities in Canada.  I found this a lot harder to do than I realized.

 

Thanks to Geoff Scott, a local Tri­Cities Producer who gave us this access (a connection through the Port Moody Arts Centre).  He was a great help in
getting airtime for us on the Shaw Cable for the GVRD.  Unfortunately, this was the greatest extent of the TV coverage.  I wanted to have this go
across the country but getting that information, local community TV was not easy at the time and creating multiple super 8 copies for all the locations
would also be cost consuming. I still believe that this still has value because not everyone has access to the internet in rural areas due to cost or
access.”

 

Since 2012, under the ROAR Steering Committee leadership of Sheila Kerr and Erin Carruthers, ROAR has reached audiences around the world through
live webcast.

 

Every year, the ROAR Steering Committee determines an arthritis topic for discussion based on current research and what patients want to know and
learn.

 

Thanks to the vision and hard work of ALL past and current members of APAB, ARC researchers and partners, we are continually evolving and ROARing
away!

 

Please join us for ROAR 2015!  Here are the details:

 

Osteoarthritis and You ­ What you can do NOW!

 

Listen. Learn. Ask questions. #eROAR

 

WHEN:
Saturday, October 3rd @ 9:15 am ­ 12:30 pm (PDT)

 

WHERE:
Vancouver Public Library, 350 West Georgia Street, Vancouver, BC.
Alice MacKay Room  View Map and Directions

 

&

 

Live Webcast starting at 9:30 am

 

COST:
In­Person: $5       Webcast: Free

 

REGISTRATION:  by Phone at 604­207­0400 or 1­844­207­0400 (toll free)

 

Topics
1. Osteoarthritis Screening
2. Diagnosis OA: what’s next?
3. What to do if I don’t want drugs or surgery?
4. Balance and Mobility
5. The RAW deal on Knee Replacement: Are you Ready, Able and Willing?
6. Total Joint Decisions

 

What is ROAR?
ROAR 2015 is a public forum organized by patients of the Arthritis Patient Advisory Board for people
affected by arthritis.  Attend in person or on­line for this unique opportunity to interact with arthritis
researchers and pose pertinent questions.

 

What can I expect at ROAR?
Patients, researchers and health care providers will gather to discuss the latest research on osteoarthritis,
arthritis screening, treatment options and the decision­making process, joint replacement surgery and more.
Each presentation will be followed by a short Question and Answer period designed to further discussion
both online and in person. To end the event a Speakers Panel will provide an opportunity for attendees to
join the dialogue and ask questions.

 

Who should attend?
People with arthritis, health care professionals, researchers and the general public will all benefit from this
discussion

 

Cheryl Koehn

OA Screening: There’s an APP for that!
Cheryl Koehn is a national arthritis advocate and 20 year rheumatoid arthritis survivor. She has devoted
herself to ensuring the inclusion of people with arthritis in all decision­making processes related to the field
of arthritis.  She founded Arthritis Consumer Experts (ACE) and its Joint Health family of programs.  She
is an ARC Board Member and also serves on a number of national arthritis organizations.

 

Dr. Jolanda Cibere, MD, MPH, FRCPC, PhD

Diagnosis OA: what’s next?
Dr. Jolanda Cibere is an Associate Professor, Division of Rheumatology at UBC and a Senior Research
Scientist at ARC.  She is a rheumatologist specializing in the research of osteoarthritis. She was the
principal investigator for a research study on the early diagnosis of osteoarthritis which led to the clinical
standardized knee exam for early detection.  She is involved in ongoing research investigating the
progression of knee and hip osteoarthritis after 3 and 6 years.

 

Dr. Michael Hunt, PhD

What to do if I don’t want drugs or surgery?
Dr. Michael Hunt is a clinical biomechanist and an Assistant Professor in the Department of Physical
Therapy at UBC.  As a physiotherapist trained in fundamental biomechanics, the focus of Dr. Hunt’s work
is to understand the biomechanical risk factors and consequences of injury and disease.  His research
assesses joint structure and movement in individuals with arthritis.

 

Judit Takacs, PhD Candidate

Balance and Mobility
Judit Takacs is a PhD candidate in the Motion Analysis and Biofeedback Lab at UBC. Her research focuses
on clarifying the assessment and treatment of knee osteoarthritis and other musculoskeletal diseases
associated with aging. She is currently the lead investigator on two randomized clinical trials evaluating
orthotics and a balance exercise program for people with knee osteoarthritis.

 

Dr. Deborah Marshall, PhD, MHSA

The RAW deal on Knee Replacement ­ Are you Ready, Able and Willing?
Dr. Deborah Marshall is an Associate Professor in the Department of Community Health Services at the
University of Calgary and the Director of Health Technology Assessment at the Alberta Bone and Joint
Institute. She is also a Senior Research Scientist at ARC. Her key projects focus on understanding patient
expectations and preferences for joint replacement surgery and developing a system dynamics model to aid
patients in decision making.

 

Dr. Nelson Greidanus, MD, MPH, FRSCS

Total Joint Decisions
Dr. Nelson Greidanus is an Assistant Professor, Department of Orthopaedic Surgery at UBC and Senior
Research Scientist at ARC.  He is an orthopaedic surgeon with subspecialty interest in complex hip and
knee replacement and reconstruction.  He is actively engaged in outcomes research, clinical trials and health
services research related to osteoarthritis and joint replacement procedures.

Schedule

 

TIME TOPIC SPEAKER

 

8:45 am ­ 9:15 am Registration
9:15 am ­ 9:30 am  Welcome In­person Audience  Gerry Sheanh
9:30 am ­ 9:40 am  Welcome Webcast Audience  Gerry Sheanh
9:40 am ­ 10:00 am OA Screening: There’s an APP for that!  Cheryl Koehn
10:00 am ­ 10:25 am Diagnosis OA: what’s next?  Dr. Jolanda Cibere
10:25 am ­ 10:45 am  What to do if I don’t want drugs or surgery?  Dr. Michael Hunt
10:45 am ­ 10:55 am     BREAK
10:55 am ­ 11:15 am  Balance and Mobility  Judit Takacs
11:15 am ­ 11:35 am The RAW deal on Knee Replacement:
Are you Ready, Able and Willing?  Dr. Deborah Marshall
11:35 am ­ 11:55 am Total Joint Decisions  Dr. Nelson Greidanus
11:55 am ­ 12:15 pm Speaker Panel
12:15 pm ­ 12:25 pm Closing Remarks

 

DIRECTIONS 

 

TRANSIT- ­ Translink Trip Planner
Bus
17, 20 Richards Street
4, 6, 7, 10, 14, 16, 50 Granville Street
HandyDart drop off on Hamilton Street between Georgia Street and Robson Street. The drop off is
designated “Passenger” zone
Skytrain
7 minute walk from the Granville, City Centre and Stadium Stations

 

PARKING 
Easy Park: The entrance to the parking garage is on Hamilton Street (near Robson Street). 5 am to
Midnight, 7 days a week.
Specially designated handicapped parking stalls beside doors to the elevators in the parking garage
below the library building.
2 hour meter parking is available around Library Square

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