Survey Part 1

Sample size 429 Average Age 41 years % identified as female 91% North American participants 73% Disease type: Rheumatoid Arthritis 58% Early pandemic: Reported change in treatment 26% Early pandemic: stopped a prescribed medication 14% Attended virtual rheumatology appointment 44% Felt supported by rheumatology care providers 59% Satisfied with virtual health care appointments 71% Preference for in-person appointments when receiving difficult news 65%

Survey Part 2

Initial participation 718 Average Age 45 years % identified as female 91% Follow-up participation 344 Feeling lonely 51% Feeling socially isolated 30% Depression 43% Anxiety 34%

Experiencing both loneliness and social isolation was linked to significantly higher depression and anxiety scores.

What Does This Mean?

This study revealed that the COVID-19 pandemic led to changes in the delivery of rheumatology care, with many healthcare providers offering virtual appointments. Based on our findings, we recommend that rheumatologists prioritize in-person appointments when discussing difficult news, ensure patient preferences are considered, and be mindful of resources.

This study also revealed that many people with rheumatic diseases experienced loneliness and social isolation during the COVID-19 pandemic, which was strongly associated with higher levels of depression and anxiety. Although COVID-19 restrictions are easing, it is important to remember that people with rheumatic diseases, who may have weakened immune systems, are still affected by the pandemic and may continue to suffer from loneliness and social isolation.