fbpx

Self-Management Support for Underserved Populations with Arthritis and Co-Morbidities

 

Study Title: Understanding the Barriers to Self-Management Support for Underserved Populations Living with Arthritis and Co-morbidities and Developing Patient-derived Tools for Healthcare Policy and Practice


Principal Investigator: 
Diane Lacaille, Senior Research Scientist of Rheumatology, MD, MHSc, FRCPC

 

Study Start Date: 2017  Study End Date: 2018

Why do this research?

People with chronic diseases and arthritis use self-management support programs and services to improve their health and manage their illnesses. However, these self-management approaches do not meet the needs of people living with arthritis in underserved and vulnerable circumstances in British Columbia.

 

What will be done?

This study will bring together research partners from relevant community organizations and people with arthritis and co -morbidities. They will participate in four workshops held over a 9-month period. During the workshops, they will design a process to identify the barriers to using self-management supports and define ways to reduce those barriers. The participants will use the process of ‘concept mapping’ to organize and analyze everyone’s ideas to produce visual maps. They will use the visual maps to determine which barriers to focus on and to find solutions that may be effective. We will support the participants in all aspects of the process and give them continuous training throughout the development of concept mapping. We will use the results of this study to develop policy and education tools that aim to improve quality of care and to revise a BC strategy for self-management support for underserved populations.

Who is involved?

The inclusion criteria for research participants are:

  1. Being diagnosed with arthritis and at least one other chronic disease for more than 2 years;
  2. Over 19 years of age;
  3. Ability to speak, read and write English;
  4. Ability to travel to/from face-to-face workshops;
  5. Be a self-reported member of an underserved population (defined for this study to include: racial/ethnic minorities, immigrants, refugees, low-income adults, older adults, homeless people, rural residents, and indigenous populations).

 

How do people get involved?

We will send our letter of engagement to community-based organizations that work with the underserved populations (racial/ethnic minorities, immigrants, refugees, low-income adults, older adults, homeless people, rural residents, and indigenous populations). We will meet with at least one organization that addresses each of these populations (some organizations might serve more than one of these groups) and seek their interest in engaging in our research process. Specifically, we will be seeking advice on the best method for recruiting 1-3 research participants within their specific communities. We have created a recruitment flyer that these community-based organizations can post within their community setting, if this is deemed to be the most effective and appropriate approach for their population. Once potential individuals are identified, they will have to contact the research associate directly to confirm interest in the study and to be screened for eligibility.

 

Who is on the research team?

Co-Investigators:

Sue Mills, PhD, MHSc. Clinical Professor, School of Population and Public health, Faculty of Medicine, University of British Columbia

Sharon Koehn, PhD, MA. Clinical Research Professor, Department of Gerontology, Simon Fraser University. Research Associate, Providence Health Care

Guillermina Perez Flores, MD. Medical Resident, Family Medicine, University of British Columbia

Nancy Clark, RN, MSc, PhD. Faculty and Clinical leader for mental health addictions nursing, Vancouver Community College

 

Collaborators:

Cherly Koehn, Founder and President, Arthritis Consumer Experts

Connie Davis, MN, ARNP (WA), RN (BC & WA), GNP-BC (US), Adjunct Faculty, University of British Columbia. Co-Director, The Centre for Collaboration, Motivation and Innovation

Maylene Fong, BSN, MSN, Adjunct Professor, School of Nursing, University of British Columbia. Manager, Home Health & Bridge Refugee Clinic, Vancouver Coastal Health

Angela Louie, Coordinator, Rehabilitation & Recovery, Mental Health & Substance Use Services, Fraser Health

Research Staff:

Brendan van As, BSc, MPH. Research Assistant, Arthritis Research Canada

Adeline Cui, University of British Columbia

Who is funding this research?

Canadian Initiative for Outcomes in Rheumatology Care (CIORA)

 

[gravityform id=4 title=false ajax=true]
<div class='gf_browser_unknown gform_wrapper gravity-theme' id='gform_wrapper_4' ><div id='gf_4' class='gform_anchor' tabindex='-1'></div> <div class='gform_heading'> <span class='gform_description'></span> </div><form method='post' enctype='multipart/form-data' target='gform_ajax_frame_4' id='gform_4' action='/research/self-management-support-for-underserved-populations-with-arthritis-and-co-morbidities-2-2/#gf_4' novalidate> <div class='gform_body gform-body'><div id='gform_fields_4' class='gform_fields top_label form_sublabel_below description_below'><div id="field_4_1" class="gfield gfield_contains_required field_sublabel_below field_description_below hidden_label gfield_visibility_visible" ><label class='gfield_label' for='input_4_1' >First Name<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='ginput_container ginput_container_text'><input name='input_1' id='input_4_1' type='text' value='' class='large' placeholder='First Name' aria-required="true" aria-invalid="false" /> </div></div><div id="field_4_2" class="gfield gfield_contains_required field_sublabel_below field_description_below hidden_label gfield_visibility_visible" ><label class='gfield_label' for='input_4_2' >Last Name<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='ginput_container ginput_container_text'><input name='input_2' id='input_4_2' type='text' value='' class='large' placeholder='Last Name' aria-required="true" aria-invalid="false" /> </div></div><div id="field_4_3" class="gfield gfield_contains_required field_sublabel_below field_description_below hidden_label gfield_visibility_visible" ><label class='gfield_label' for='input_4_3' >Email<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='ginput_container ginput_container_email'> <input name='input_3' id='input_4_3' type='email' value='' class='large' placeholder='Email Address' aria-required="true" aria-invalid="false" /> </div></div></div></div> <div class='gform_footer top_label'> <input type='submit' id='gform_submit_button_4' class='gform_button button' value='Subscribe' onclick='if(window["gf_submitting_4"]){return false;} if( !jQuery("#gform_4")[0].checkValidity || jQuery("#gform_4")[0].checkValidity()){window["gf_submitting_4"]=true;} ' onkeypress='if( event.keyCode == 13 ){ if(window["gf_submitting_4"]){return false;} if( !jQuery("#gform_4")[0].checkValidity || jQuery("#gform_4")[0].checkValidity()){window["gf_submitting_4"]=true;} jQuery("#gform_4").trigger("submit",[true]); }' /> <input type='hidden' name='gform_ajax' value='form_id=4&amp;title=&amp;description=1&amp;tabindex=0' /> <input type='hidden' class='gform_hidden' name='is_submit_4' value='1' /> <input type='hidden' class='gform_hidden' name='gform_submit' value='4' /> <input type='hidden' class='gform_hidden' name='gform_unique_id' value='' /> <input type='hidden' class='gform_hidden' name='state_4' value='WyJbXSIsIjBkMjRlYjFkM2FlNTc1OTE5MDU0MTVkNzE4YjNjMjdlIl0=' /> <input type='hidden' class='gform_hidden' name='gform_target_page_number_4' id='gform_target_page_number_4' value='0' /> <input type='hidden' class='gform_hidden' name='gform_source_page_number_4' id='gform_source_page_number_4' value='1' /> <input type='hidden' name='gform_field_values' value='' /> </div> </form> </div> <iframe style='display:none;width:0px;height:0px;' src='about:blank' name='gform_ajax_frame_4' id='gform_ajax_frame_4' title='This iframe contains the logic required to handle Ajax powered Gravity Forms.'></iframe> <script type="text/javascript"> gform.initializeOnLoaded( function() {gformInitSpinner( 4, 'https://www.arthritisresearch.ca/wp-content/plugins/gravityforms/images/spinner.svg' );jQuery('#gform_ajax_frame_4').on('load',function(){var contents = jQuery(this).contents().find('*').html();var is_postback = contents.indexOf('GF_AJAX_POSTBACK') >= 0;if(!is_postback){return;}var form_content = jQuery(this).contents().find('#gform_wrapper_4');var is_confirmation = jQuery(this).contents().find('#gform_confirmation_wrapper_4').length > 0;var is_redirect = contents.indexOf('gformRedirect(){') >= 0;var is_form = form_content.length > 0 && ! is_redirect && ! is_confirmation;var mt = parseInt(jQuery('html').css('margin-top'), 10) + parseInt(jQuery('body').css('margin-top'), 10) + 100;if(is_form){jQuery('#gform_wrapper_4').html(form_content.html());if(form_content.hasClass('gform_validation_error')){jQuery('#gform_wrapper_4').addClass('gform_validation_error');} else {jQuery('#gform_wrapper_4').removeClass('gform_validation_error');}setTimeout( function() { /* delay the scroll by 50 milliseconds to fix a bug in chrome */ jQuery(document).scrollTop(jQuery('#gform_wrapper_4').offset().top - mt); }, 50 );if(window['gformInitDatepicker']) {gformInitDatepicker();}if(window['gformInitPriceFields']) {gformInitPriceFields();}var current_page = jQuery('#gform_source_page_number_4').val();gformInitSpinner( 4, 'https://www.arthritisresearch.ca/wp-content/plugins/gravityforms/images/spinner.svg' );jQuery(document).trigger('gform_page_loaded', [4, current_page]);window['gf_submitting_4'] = false;}else if(!is_redirect){var confirmation_content = jQuery(this).contents().find('.GF_AJAX_POSTBACK').html();if(!confirmation_content){confirmation_content = contents;}setTimeout(function(){jQuery('#gform_wrapper_4').replaceWith(confirmation_content);jQuery(document).scrollTop(jQuery('#gf_4').offset().top - mt);jQuery(document).trigger('gform_confirmation_loaded', [4]);window['gf_submitting_4'] = false;wp.a11y.speak(jQuery('#gform_confirmation_message_4').text());}, 50);}else{jQuery('#gform_4').append(contents);if(window['gformRedirect']) {gformRedirect();}}jQuery(document).trigger('gform_post_render', [4, current_page]);} );} ); </script>