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Reason For Research
Sleep disturbances, including difficulty falling asleep, staying asleep, and/or waking up early in the morning are all symptoms of insomnia. They are, reported in up to 80% of persons with Systemic Lupus Erythematosus (SLE). Sleep disturbances worsen other symptoms of SLE including fatigue, pain, and depression causing poor quality of life. For most people with SLE, insomnia is unrecognized and untreated. The first-line treatment for insomnia is cognitive behavioural therapy for insomnia (CBTi), but no study has evaluated its intervention in people with SLE.
This study will adapt an internet delivered CBTi (ICBTi) intervention to the needs of persons living with SLE experiencing insomnia and gather pilot data to determine its uptake, acceptability and preliminary data on its effects in terms of improving sleep and other symptoms such as fatigue and depression. This study fills an important gap in SLE care and will provide new knowledge on the acceptability and preliminary benefits of a nondrug intervention for managing insomnia in SLE.
Execution of Research
We will conduct an on-line needs assessment of people with SLE focused on insomnia and refine the ICBTi program. Then, we will test the acceptability of the program and initial effectiveness of the program by enrolling people with SLE suffering from insomnia for a 6-week period to gather their feedback about the program and monitor their symptoms. They will be re-evaluated 3 months after completion of the program.
Involvement
Recruitment for the needs assessment is ongoing. Click on this link for more information. https://portal.rimuhc.ca/cim/redcap/surveys/?s=ADPLL9KJDJ