Citizen Science: A Web Portal for Patients to Transform Pain Research
Scientific Study Title:
Integrated KT 2.0: Development of an Online Citizen Science Portal
Study Start Date:
August 2018
End Date:
Ongoing
Why Do This Research?
Pain affects many people, but it is complex and poorly understood. No one knows more about pain than the people who live with it. Citizen Science is a social movement that gets the public to join forces with health scientists to learn more about pain. By sharing your experiences and theories about pain on the Citizen Science platform, you can help health scientists ask better questions when they are researching ways to better understand and treat pain.
What Will Be Done?
You can sign-up or continue to explore the Citizen Science website as a guest user. On the website, you will go through a series of “levels” each with questions asking you about your pain. When you sign-up, you can complete each of these levels at your own time!
You may be eligible if you:
- Have a chronic illness or disability
- Are 19 years of age or older
- Live in Canada
How do people get involved?
Visit https://patientscientist.ca/pain-survey to explore our website and make a contribution.
Contact:
Email: citizenscience@arthritisresearch.ca
Research Team
Principal Investigators:
Linda Li, BSc(PT), MSc, PhD, FCAHS, Senior Scientist, Implementation Science, Arthritis Research Canada (University of British Columbia)
Co-Investigators:
Diane Gromala, MFA, PhD; Professor, Simon Fraser University
Chris Shaw, MSc, PhD; Professor, Simon Fraser University
Leanne Currie, RN, PhD; Professor, University of British Columbia
Erin Michalak, PhD; Professor, University of British Columbia
Funding Agency
The Citizen Science project is funded by the BC SUPPORT Unit, Knowledge Translation and Implementation Science Methods Cluster.
Technology Partner
Tactica Interactive
