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  • What We're Working On
Improving Equity, Diversity, and Inclusion (EDI) in Arthritis Research
Research-EDI-Study_425x296
Scientific Study Title:
Advancing Equity, Diversity, and Inclusion in Arthritis Research: A Mixed-Methods Group Concept Mapping Approach
Start Date:
  • 2025
End Date:
  • 2028
Research Category
Tags
Mary De Vera-Website Headshot-400x400
Mary De Vera
MSc, PhD, Associate Director of Training, Senior Scientist, Pharmacoepidemiology
Cheryl Barnabe-Website Headshot-400x400
Cheryl Barnabe
Senior Scientist, Rheumatology, MD, MSc, FRCPC
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Codie Primeau
Affiliate Scientist, Physiotherapy, PT, PhD
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Megan Thomas
BSc, MSc, PhD, Postdoctoral Fellow
P018SnlMrHk9aZlxRO_uBPJxHoeStQG68T1w5W3YlD8
Hui Xie
Senior Scientist, Biostatistics, BSc, MS, PhD

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Why do this research?

Reason For Research

Arthritis affects more than six million people in Canada. Arthritis research is extremely important so that we can find better treatments and supports, since there is currently no cure. Past research in Canada has left out certain groups of people, especially those from diverse backgrounds or those who face disadvantages. There has been little attention given to why some people have worse health outcomes than others, and how to make research more inclusive for everyone. We are doing this study to support more inclusive research on arthritis care and treatment.

Methodology

Execution of Research

The project will have two parts.

First, the research team will interview people living with arthritis to design a demographic survey that collects better information about their backgrounds and experiences. Our aim for designing this survey is that researchers can use this in future studies to understand what contributes to unfair differences in health (inequities).

Second, the research team will hold group sessions, both online and in person, with people affected by arthritis. The aim is to come up with ideas to include more diverse communities in arthritis research.

Who is involved?

Involvement

This project will bring together patients, researchers, healthcare providers, and decision-makers like arthritis organizations and funders to help make arthritis research more inclusive.

How are Equity, Diversity and Inclusion addressed or taken into consideration? This study is focused on understanding how to better include people from diverse backgrounds in arthritis research. By listening to a wide range of voices and perspectives, the project aims to identify practical ways to make arthritis research more fair, inclusive, and representative of everyone affected by the disease.

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