Arthritis in children and teens is considered a very rare disease. Children with arthritis suffer from fatigue, joint pain, stiffness and swelling causing reduced mobility. This results in joint damage and life-long disability. The financial cost to the family includes: medication costs; modified home and school environment; and lost family income due to absences or ability to work at all. The social impact to the child is missed school days, limited ability to play with other children and the image that they are different. It is very difficult for children and other adults to understand that arthritis is a disease for all ages, not just ‘for old people’. The impact to the child is failed or lower education, a future of low paying jobs or unemployment due to disability, and for many poor mental health. For the parent as the prime caregiver and tutor, this can result in anxiety, depression and loneliness. In-fact, the whole family unit is impacted. The goal is to reduce inequalities, reduce the cost and improve the lives of children living with arthritis. Children with arthritis and their families need a voice.