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Reason For Research
Initially, when patients receive a diagnosis of a chronic disease, such as rheumatoid arthritis, they may feel overwhelmed and find it difficult to make decisions about treatment at the first rheumatology appointment. Patient decision aids are standardized tools that can help patients and their doctors discuss treatment options, leading to shared decision making. Many studies over the last 20 years have highlighted the benefits of decision aids in healthcare. We didn’t always have a good understanding of the best way to use these tools in clinic appointments. In this study, we used a decision aid that we have already developed and tested to help patients newly diagnosed with rheumatoid arthritis make decisions about their treatment. Our focus was to understand the best way to use this tool in the clinic.
Execution of Research
This research included 2 phases:
Phase 1 included interviews with Canadian healthcare providers and patients with rheumatoid arthritis. We wanted to get their views on patient decision aids and explore the challenges and supports of using them.
Phase 2 included using a behaviour change model called the COM-B (Capability, Opportunity, Motivation, and Behavior) framework to help understand why people do or don’t use decision aids. Mapping of the themes onto the COM-B framework was reviewed by patient partners and researchers and was also used to guide suggestions for how to encourage the use of decision aids on a national scale.
Fifteen health care providers and fifteen patients took part in the interviews. From their responses, five key themes were identified:
Once the themes were mapped onto the COM-B framework, six recommendations were identified by the researchers and patient partners to increase the use of decision aids:
This research revealed the challenges and helped to identify proposed steps for implementing decision aid use in rheumatoid arthritis care in Canada.
Laurie Proulx, BComm, Vice President, Canadian Arthritis Patient Alliance
Dawn Richards, PhD, Vice President, Canadian Arthritis Patient Alliance
Canadian Initiative for Outcomes in Rheumatology cAre (CIORA)