Making it Work™: Helping people with inflammatory forms of arthritis at work
Scientific study title:
PHASE III: Randomized Controlled Trial evaluating the effectiveness of a web-based program, Making-it-Work™ at improving at-work productivity and preventing work disability in employed people with inflammatory forms of arthritis.
Diane Lacaille – MD, MHSc, FRCPC. Scientific Director, Arthritis Research Canada; Professor and Associate Head Academic Affairs, Division of Rheumatology, Department of Medicine, University of British Columbia.
Why do this research?
This research is the 3rd Phase in our evaluation of Making it Work™ program. In this phase, we are conducting a randomized controlled trial of our eLearning program—a novel intervention to help people with inflammatory arthritis maintain employment. This unique program, called Making it Work™, was created to improve an aspect of disease management that is too often ignored by health care professionals – the management of employment issues. It fills a gap of utmost importance in the health care services available for people with arthritis, and has a great potential for improving quality of life and reducing the cost of arthritis.
We had previously tested a face-to-face version of the program (Phase 1). We have since converted our program into a web-based program so that its benefits can be offered to a larger number of people, especially those people living in areas with few services (Phase II). Furthermore, the video group meetings are at the leading edge of trends in the field of adult education and self-management.
This research is one of few initiatives worldwide to develop and test the effectiveness of interventions specifically targeted at employment. In this age of evidence-based health care delivery, the highest level of evidence, provided by a randomized controlled trial (RCT), is needed for our research to translate into a new service offered to people with arthritis.
How was this study conducted?
Participants were recruited from across BC, Alberta and Ontario. We sent letters of invitation to individuals who attended outpatient arthritis programs, RA educational workshops from Arthritis Consumer Experts, and rheumatology practices; as well as to people enrolled in a benefit plan for teachers in Alberta. Participants were randomly assigned to receiving the program or receiving usual care (control group) with some written information on work and arthritis. As such, people had a 50-50 chance of receiving the program right away or having to wait until the end of the study to receive the program.
The program consists of three main components:
- 5 web-based e-learning modules on topics related to work and arthritis. These modules include a combination of text, art work, audio recordings, video-clips, self-learning activities, and animations to provide knowledge and demonstrate skills and techniques;
- 5 bi-weekly on-line video group sessions conducted as real-time meetings led by a trained facilitator. Participants were able to share experiences with the group, discuss problems encountered and strategies used to overcome them, report on progress, and practice techniques shown in the on-line modules; and,
- On-line consultations with employment-related professionals. Participants met with an occupational therapist (OT) and a vocational rehabilitation counsellor (VRC) to determine what changes were needed and to develop an individualized plan for making those changes.
Currently, all participants randomized to the intervention have received the program, and some of the people randomized to usual care who have completed the five-year study period, are now receiving the program.
In June 2019, everyone had been followed for two years, allowing us to look at whether the program helps people be more productive while at work. Results were positive.
We still need to continue to follow everyone for a total of five years, with on-line questionnaires filled out every six months, in order for us to see whether the program prevents people from having to stop work due to their arthritis.
Effectiveness of the Making it Work™ Program at Improving Presenteeism and Work Cessation in Workers with Inflammatory Arthritis – Results of a Randomized Controlled Trial. Authors: Luquini A, Zheng Y, Xie H, Backman CL, Rogers P, Kwok A, Knight A, Gignac MAM, Mosher D, Li LC, Esdaile JM2, Thorne C, Lacaille D.
Who is funding the research?
This research is funded by a grant from the Canadian Institutes of Health Research (CIHR)
Who is on the research team?
Catherine Backman – PhD, OT, FCAOT. Research Scientist, Arthritis Research Canada; Professor and Head, Department of Occupational Science, University of British Columbia.
John Esdaile – MD, MPH, FRCPC, FCAHS. Scientific Director Emeritus, Arthritis Research Canada; Professor Emeritus of Medicine, Division of Rheumatology, University of British Columbia.
Monique Gignac – PhD. Research Scientist, University Health Network, University of Toronto; Associate Professor, Dalla Lana School of Public Health, University of Toronto; Adjunct Scientist, Institute for Work and Health, Toronto; Co-Scientific Director, Canadian Arthritis Network.
Linda Li – BSc (PT), MSc, PhD, FCAHS. Senior Research Scientist, Arthritis Research Canada; Professor, Department of Physical Therapy, University of British Columbia.
Pam Rogers – MA, Research Coordinator, Arthritis Research Canada
Alex Kwok, MSc, Research Assistant, Arthritis Research Canada.
Arthritis Consumer Experts – Cheryl Koehn
Arthritis Patient Advisory Board – Pam Montie, Otto Kamensek.
Recruitment for this study is now complete. However, we are offering the program to the participants who are in the control group. In January 2022, we will be offering our program to the general public. If you would like more information about this study, please contact us at firstname.lastname@example.org.