Arthritis Self-Management Program for Indigenous People – Kwakiutl District Council
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Scientific Study Title:
Arthritis Self-Management Program for Indigenous People – Kwakiutl District Council
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Catherine Backman
Senior Scientist Emeritus, Rehabilitation, PhD, FCAOT
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Linda Li
Senior Scientist, Implementation Science, BSc(PT), MSc, PhD, FCAHS
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Deborah Da Costa
Research Scientist, Psychology, PhD
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June Kaminski
Research Coordinator, RN, BSN, MSN, PhD Candidate

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Why do this research?

Reason For Research

The results of our research will improve arthritis care in a manner that meets the needs of Indigenous communities. Indigenous peoples in Canada (First Nations, Métis, Inuit) get arthritis more often and more severely than non-Indigenous peoples. In Indigenous communities, access to medical care is often poor. We know that Indigenous communities function best when the community is involved, but we know little about arthritis management strategies that involve family members. We are partnering with several First Nations communities served by the Kwakiutl District Council, Vancouver Island to develop and evaluate a program to improve the arthritis management. Unlike other arthritis programs, this project will involve family members and will be relevant to Indigenous culture. We will:

  • Develop a culturally sensitive, family-based program for Indigenous people and family members to improve arthritis self-management
  • Find out how well the program works in Indigenous communities
  • Improve the ability for care and research by Indigenous people for Indigenous people

What has been found?

We previously worked with several BC First Nations’ communities. We identified who had arthritis and evaluated their access to care. We found that the key barriers to adequate care included:

  1. Lack of access to culturally-relevant services
  2. Lack of family member involvement in health care

Methodology

Execution of Research

We will consult with First Nations people with inflammatory arthritis and adult family members to make sure the program focuses on the issues important to them. Based on our consultations so far, the program will focus on persons with arthritis and their family members in a group self-management program to:

  • Improve understanding of arthritis
  • Optimize social support from spouse or family member,
  • Improve communication
  • Strengthen skills to cope with pain and other arthritis symptoms.

Phase I: We held three separate focus group discussions. The three groups were people with arthritis, family members of people with arthritis, and people with arthritis with their family members. We are using the information obtained from the focus groups to develop the culturally relevant, family-based program. Phase II: We will run the culturally relevant, family-based program and evaluate how well the program improves the self-management of arthritis.

Who is funding the research?

Canadian Arthritis Network and the Arthritis Society, BC/Yukon Division

External Partners & Contacts

Matthew H. Liang, MD, MPH; Professor, Department of Health Policy and Management, Harvard School of Public Health; Associate Professor of Medicine, Harvard Medical School; Scientist Emeritus, Arthritis Research Canada John O’Neil, MA, PhD; Professor and Dean, Faculty of Health Sciences, Simon Fraser University Paul Adam, MSW; Rheumatology Liaison & Outreach Services Coordinator, Mary Pack Arthritis Centre Phyllis Jorgensen, Health Director, Kwakiutl District Council Health Centre Kim Roberts, Program Manager, Kwakiutl District Council Health Centre Joyce Greene, Indigenous Consumer Pam Montie, Consumer, Arthritis Patient Advisory Board, Arthritis Research Canada Brenda Elias, BA, MA, PhD; Assistant Professor, Department of Community Health Sciences, University of Manitoba Kwakiutl District Council, Vancouver Island Arthritis Patient Advisory Board, Arthritis Research Canada The Arthritis Society, BC & Yukon Division

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