Every year, our scientists and patient advisory group identify the studies and topics creating the most impact for people living with arthritis.
Uncover Our Focus for 2026Ongoing and completed studies across our full research portfolio, from prevention and treatment to care and health systems.
Explore Our ResearchMeet the scientists, clinicians, trainees, and patient advisory board members, driving discoveries
Meet Our TeamArthritis Research Canada's scientists and trainees regularly present new findings that advance arthritis prevention, treatment, and care.
Browse Conference AbstractsPeople living with arthritis guide our research priorities, shape study design, and ensure our work reflects real life.
Support Arthritis Research Canada with your time and skills. Whether you want to help at an event or host your own, there is a place for you here.
Living with arthritis? Explore open studies looking for participants and help shape the future of arthritis care.
Your experience with arthritis matters. Sharing it helps others feel less alone and brings the human reality of arthritis into everything we do.
Reason For Research
The results of our research will improve arthritis care in a manner that meets the needs of Indigenous communities. Indigenous peoples in Canada (First Nations, Métis, Inuit) get arthritis more often and more severely than non-Indigenous peoples. In Indigenous communities, access to medical care is often poor. We know that Indigenous communities function best when the community is involved, but we know little about arthritis management strategies that involve family members. We are partnering with several First Nations communities served by the Kwakiutl District Council, Vancouver Island to develop and evaluate a program to improve the arthritis management. Unlike other arthritis programs, this project will involve family members and will be relevant to Indigenous culture. We will:
What has been found?
We previously worked with several BC First Nations’ communities. We identified who had arthritis and evaluated their access to care. We found that the key barriers to adequate care included:
Execution of Research
We will consult with First Nations people with inflammatory arthritis and adult family members to make sure the program focuses on the issues important to them. Based on our consultations so far, the program will focus on persons with arthritis and their family members in a group self-management program to:
Phase I: We held three separate focus group discussions. The three groups were people with arthritis, family members of people with arthritis, and people with arthritis with their family members. We are using the information obtained from the focus groups to develop the culturally relevant, family-based program. Phase II: We will run the culturally relevant, family-based program and evaluate how well the program improves the self-management of arthritis.
Who is funding the research?
Canadian Arthritis Network and the Arthritis Society, BC/Yukon Division
Matthew H. Liang, MD, MPH; Professor, Department of Health Policy and Management, Harvard School of Public Health; Associate Professor of Medicine, Harvard Medical School; Scientist Emeritus, Arthritis Research Canada John O’Neil, MA, PhD; Professor and Dean, Faculty of Health Sciences, Simon Fraser University Paul Adam, MSW; Rheumatology Liaison & Outreach Services Coordinator, Mary Pack Arthritis Centre Phyllis Jorgensen, Health Director, Kwakiutl District Council Health Centre Kim Roberts, Program Manager, Kwakiutl District Council Health Centre Joyce Greene, Indigenous Consumer Pam Montie, Consumer, Arthritis Patient Advisory Board, Arthritis Research Canada Brenda Elias, BA, MA, PhD; Assistant Professor, Department of Community Health Sciences, University of Manitoba Kwakiutl District Council, Vancouver Island Arthritis Patient Advisory Board, Arthritis Research Canada The Arthritis Society, BC & Yukon Division
Share this on social media