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Understanding the care of people with rheumatoid arthritis
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Scientific Study Title:

Rheumatoid Arthritis in Canadian Primary Care Settings: Epidemiology, Management of Care and Patient Experience

Start Date: 

  • January 1, 2021

End Date:

  • December 31, 2023

Research Category

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Allyson Jones
Affiliate Scientist, Rehabilitation Sciences, PT, PhD

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Why do this research?

Reason For Research

Family physicians play a key role in the management of rheumatoid arthritis and are often the patient’s first contact with the healthcare system. The management of rheumatoid arthritis by family physicians across the provinces in Canada is not known.

This research will have two results. A short-term one will be a national description of healthcare provided by physicians. The long-term one will be the identification of any gaps in primary care and providing direction to address these gaps.

Methodology

Execution of Research

We will use data from a Canadian national surveillance network that collects information from family physicians in communities to determine the number of people who see family physicians for rheumatoid arthritis and the type of treatment they receive both before and after a diagnosis of rheumatoid arthritis. We will interview people with this type of arthritis to understand their views on managing their condition and navigating the healthcare system. We will interview family physicians and rheumatologists to learn about their experiences diagnosing and supporting patients with rheumatoid arthritis.

Who is involved?

Involvement

This interdisciplinary team of 14 members will use primary care data from a national surveillance network to look at persons with rheumatoid arthritis (40 to 50 patients with rheumatoid arthritis from BC, AB, ON, QC and NS will be interviewed about their experiences living with this type of arthritis and accessing care).

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