Partnering With Transgender and Gender Diverse Communities In Research
ENGAGE_PLS
Scientific Study Title:
Ethical partnerships with transGender And Gender diverse communities for conducting pharmacoEpidemiologic research (EnGAGE)
Start Date:
End Date:
Research Category
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Mary De Vera
MSc, PhD, Associate Director of Training, Senior Scientist, Pharmacoepidemiology

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Why do this research?

Reason For Research

Transgender and gender diverse people are more likely to have poorer mental and physical health outcomes. They face more barriers to getting the care they need due to a lack of health research about this unique group, especially as they age. This study gathers information by partnering with the transgender community to understand their priorities and will provide the information to those who serve this group.

Methodology

Execution of Research

This study partners with the transgender community and other healthcare providers to understand their health needs by:

  1. Individual interviews and focus groups are being held to develop guidelines to address their priorities regarding research studies.
  2. A symposium will be hosted to present the planning activities and to share information gathered for future research and advocacy.
  3. The design of practical tools for researchers to use to design transgender health research that meets the needs of the transgender community.

Who is involved?

Involvement

Transgender and gender-diverse Canadian patients, researchers, community, and institutional stakeholders.

Equity, Diversity, and Inclusion

The nature of this project works on EDI in pharmacoepidemiologic research. Equity, here, acknowledges the lack of ethical research in support of trans and gender-diverse folks and addresses the concern of inclusion through the development of guidelines.

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