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Why do this research?

Reason For Research

Rheumatoid Arthritis (RA) is a chronic condition causing joint pain and swelling and is a leading cause of disability. Other than joints, inflammation from RA can affect people in different ways. People with RA may experience higher rates of anxiety, depression and lung disease.

People living with the same chronic health conditions may have very different needs. A more holistic approach for the individual looks at the ‘biopsychosocial’ factors, such as: disease severity; work and home responsibilities; ability to communicate needs, and ability to access health care. Current health care only looks at the condition and may not necessarily look at all these ‘biopsychosocial’ factors that may affect health care needs of the individual.

Methodology

Execution of Research

This study will modify an existing tool, the ‘INTERMED Self-Assessment’ (IMSA) tool for individuals with RA. We will determine if this tool is better at identifying a more holistic approach to health care for the individual needs of patients.

Who is involved?

Involvement

Our study team will interview people with RA and various rheumatology healthcare providers (e.g., rheumatologists, nurses, pharmacists, etc.). We will ask them to share their thoughts about the IMSA tool and see if the tool is understandable and relevant. Changes will be made to the IMSA tool based on the feedback we receive. We will further test the revised survey to make sure it measures patient needs accurately and reliably.

Have questions about this research?

Please feel free to contact us at info@arthritisresearch.ca.