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  • What We've Learned
Arthritis, parenting and household work
Everyday-Living-1-1
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Why did we do this research?

According to Statistics Canada, approximately 65% of women are mothers with children at home. There is very little research on the effect of arthritis on the role of mothers, although some studies of mothers with disabilities (including arthritis) have identified physical limitations caring for young children, such as bathing or carrying children, or manipulating small items like buttons or hair ribbons when helping children dress. One of our previous studies on participation in paid and unpaid work demonstrated that one-third of women with arthritis who identified “mother” as their main form of work reported limitations in doing the tasks necessary to be a mother. Parenting activities, like listening, comforting, and teaching children, are often done concurrently with household tasks like planning meals, cooking, laundry and shopping. For this reason, we think it is important to simultaneously study motherhood and household work, rather than separating them into two different areas of study. This study builds on the existing knowledge, but also works towards identifying: a) What predicts parenting and household work disability? b) What solutions can we use in health, rehabilitation and social service programs to assist mothers with challenges in parenting and household work? Results will also help us plan future studies related to arthritis and parenting, for example, with fathers who have arthritis.

What did we find?

In the interview study, we gathered rich descriptions of the occupation of mothering. There is a careful balance of fatigue and energy involved in caring for children that is complicated by the fatigue that comes with arthritis. Mothers experienced different kinds of support, both positive and negative, from family, friends and health care providers. The main finding was reflected in the statement “Sometimes I can, sometimes I can’t” which was used to describe the difficulties and problem-solving strategies mothers used to participate in the everyday tasks of motherhood. In the survey study, we found that women with arthritis experienced just as much satisfaction in their identity and role of mother as did women without arthritis. This occurred despite a range of difficulties reported when performing parenting tasks like dressing or carrying children, and engaging in school or club activities on behalf of their children. All mothers experience fatigue, but the severity and frequency of fatigue experienced by mothers with arthritis was much greater than those without arthritis. The emotional health status was similar in the two groups (with and without arthritis), but mothers with arthritis reported more limitations in their physical health. Mothers without arthritis were more likely to be employed: 79% of mothers without arthritis were doing paid work compared to 59% of mothers with arthritis. Consequently, it was not surprising that the household income for families of mothers without arthritis was higher than for families of mothers with arthritis. Mothers with arthritis may have fewer financial resources available in terms of household help. Two key messages from this study:

  • mothers with arthritis are just as satisfied in the parenting role as mothers without arthritis, despite some physical difficulties caring for children
  • “being” a mother (one’s sense of identity as a mother) is distinct from “doing” motherhood tasks
  • Study findings will be used to inform occupational therapy, rehabilitation, and social services aimed at helping people with arthritis do the everyday tasks that are important to them – in this case, parenting. Findings will also inform a new study on fathers, where we can compare experiences of men and women in parenting with arthritis.

The Research Team

Principal Investigator

  • Catherine Backman, PhD, FCAOT, Senior Scientist, Rehabilitation, Arthritis Research Canada (University of British Columbia)

Research Staff who helped with different stages of the study

  • Linda Del Fabro Smith, BSc (OT), MSc (graduate student at time of study)
  • Sharon Smith, PhD (graduate student at time of study) Katie (Rogers)
  • Adam, ARC Summer research assistant Lisa Singh, ARC Research Secretary

Collaborators

  • Andrew Chalmers, MD Rheumatologist & Professor, UBC Dept of Medicine
  • Diane Lacaille, MDCM, MHSc, FRCPC, Scientific Director, Arthritis Research Canada (University of British Columbia)
  • Allen Lehman, PhD Research Associate, ARC
  • Pamela Montie Consumer Collaborator, Consumer Advisory Board, ARC
  • Melinda Suto, PhD Assistant Professor UBC Department of Occupational Science & Occupational Therapy

Who Funded This Research?

This research has been funded by the American College of Rheumatology Research and Education Foundation through a Health Professional Investigator Award.

How Can People Get Involved?

In the first part of the study, we conducted in-depth interviews with 12 mothers with arthritis. In the second part of the study we surveyed 352 mothers (190 with arthritis and 152 without any chronic illness). All mothers had at least 1 child under 21 years of age living at home. We recruited mothers through arthritis out-patient clinics, rheumatology (arthritis specialists) offices, and an arthritis consumer group web site. We recruited mothers without arthritis by asking mothers with arthritis to share a letter of invitation with friends, by notices in community newspapers, employment and community centre bulletin boards, and word of mouth. Most of the women in the arthritis group have rheumatoid arthritis (58%). 15% have psoriatic arthritis, 13% ankylosing spondylitis, 4% juvenile idiopathic arthritis and 3% lupus.

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