Improving Quality of Care for Rheumatoid Arthritis
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Scientific Study Title:
Developing a patient-centered balanced scorecard approach for rheumatoid arthritis.
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Claire Barber-Website Headshot-400x400
Claire Barber
Research Scientist, Rheumatology, MD, PhD, FRCPC
image of Dr. Diane Lacaille
Diane Lacaille
MDCM, MHSc, FRCPC, Scientific Director, Rheumatology
Cheryl Barnabe, Research Team Member, Arthritis Research Canada
Cheryl Barnabe
Senior Scientist, Rheumatology, MD, MSc, FRCPC
Glen Hazlewood-Website Headshot-400x400
Glen Hazlewood
Research Scientist, Rheumatology, MD, PhD, FRCPC
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Linda Li
Senior Scientist, Implementation Science, BSc(PT), MSc, PhD, FCAHS
Deborah A. Marshall, Research Team Member, Arthritis Research Canada
Deborah A. Marshall
Senior Scientist, Health Services Research and Health Economics, PhD

Why did we do this research?

In Canada, the quality of care for patients with inflammatory arthritis is not routinely monitored. As a result, there may be variations in care that could lead to poor patient outcomes. Inflammatory arthritis conditions cause joint pain, swelling, and deformity, leading to disability. Rheumatoid arthritis is the most common type found among adults.

One approach to monitoring and improving the quality of care provided to patients is the implementation of a balanced scorecard. Like a report card, a balanced scorecard is a structured approach to improving care efficiency and performance that represents viewpoints from multiple stakeholder perspectives. In this case, the knowledge users and interest holders include people living with arthritis, healthcare providers, healthcare managers and policy makers. A key part of this approach is that performance data is reported back to clinics and health care providers, so they can work on improving things where performance was not optimal. This feedback is critical, as we cannot improve what we don’t measure.

 

What did we do?

The research study included three phases.

Phase One was conducted in collaboration with the Arthritis Alliance of Canada (AAC) and the Canadian Rheumatology Association (CRA). A series of focus groups and interviews were held with people living with arthritis, physicians, allied health providers, healthcare managers and policymakers. The purpose of phase one was to understand what is necessary for providing high-quality care for people with rheumatoid arthritis in Canada.

In Phase Two, the aim was to create a scorecard for measuring the quality of care for rheumatoid arthritis that aligned with findings from Phase One. First, a systematic review was conducted to identify existing quality measures in rheumatoid arthritis care and map them according to the findings in Phase One. Second, a group of experts in the field of performance measurement and two patient partners were brought together to finalize the measures to be included in the scorecard. These measures were used to inform Phase Three.

Phase Three was conducted in collaboration with the Alberta Medical Association’s Physician Learning Program. First, five quality measures that focus on treating rheumatoid arthritis according to ‘treat-to-target’ principles were selected from the 21 measures identified in phase two. The five measures included regular follow-ups, documenting disease activity, timely appointments for non-remission patients, achieving low disease activity, and remission rates. Then, the measures were tested and put into action in real-life rheumatology clinics and were reported on by physicians via ‘practice reports’. This research also captured how rheumatologists felt about receiving personalized reports on their performance. Data was collected using Rheum4U, an online platform for quality improvement and research.

 

The Research Team

Kelly English, Arthritis Patient Advisory Board of Arthritis Research Canada

K. Tsui, Arthritis Patient Advisory Board of Arthritis Research Canada

Who Funded This Research?

Canadian Institutes of Health Research

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