Participate in Research

Participants needed: Rheumatoid arthritis care. Optimizing early treatment strategies in early RA through shared decision-making

 

Start and end date: 

February 2020 – May 2021

Why do this research?

It is important for patients with rheumatoid arthritis (RA) to have a say in their treatment and make shared decisions with their doctors. Decision aids are tools that can help patients and doctors work together to choose between treatments. Decision aids help patients understand their options and what is most important to them. From doing research we know that decision aids are helpful. But we do not know the best way to use them in regular rheumatology clinics. In this study we want to learn the best way to use patient decision aids. Then we will create and test a plan in a local rheumatology clinic.

What will be done?

This study has two parts. In the first part, we will interview people from across Canada who have RA. We will ask people what they think about the decision aids we made and how they would like to see them used in clinic. We will also interview healthcare providers who work in RA clinics across Canada. We want to learn how the decision aids could fit into existing clinic practices. Talking to patients and healthcare providers will help us get a balanced understanding.

Our local healthcare providers in Calgary, Alberta will meet to make a plan for how to use the decision aids. The things we learn from the patient and healthcare provider interviews will be included in the plan. In the second part of the study, we will test the plan in a rheumatology clinic in Calgary. We will look at a number of things to decide if it is working. For example, how often doctors use the decision aids and what their reasons are for not using them. We will also look at patients’ experiences using the decision aids. For example, how confident they feel about their treatment choice after using the decision aid. We will make adjustments to the plan as we find new and better ways to use the decision aids in the clinic.

Who is involved?

In the first part of the study we will be talking to people who have RA, rheumatologists, and allied healthcare providers from across Canada. The second part of the study will be done at a rheumatology clinic in Calgary.

Who is funding this research?

Canadian Initiative for Outcomes in Rheumatology Care

Who is on the research team?

Principle Investigator:
Claire Barber, MD PhD FRCPC
Assistant Professor, Division of Rheumatology
Department of Medicine, Cumming School of Medicine
University of Calgary

Co-Investigators:

  • Glen Hazlewood, MD PhD FRCPC
  • Diane Mosher, MD FRCPC
  • Linda Li, PT PhD
  • Nick Bansback, PhD
  • Dawn Richards, PhD
  • Laurie Proulx

How do people get involved?

We are looking for people to interview for the first part of the study. If you have RA we would love to talk to you. Please email the study coordinator, Nicole Spencer, at nicole.spencer@ucalgary.ca to schedule an interview or learn more.

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