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Participate in Research

Participants needed: Rheumatoid Arthritis (RA) Quality of Care Survey

 

Start and end date: 

October 2020 – October 2021

Why do this research?

We created a survey for RA patients that measures quality of arthritis care. The survey looks at whether patients have received counselling for smoking cessation, exercise, and lifestyle habits. Existing surveys for RA patients often do not include these topics. It is also difficult to get this information through other methods such as patient charts or medical records. By including these topics in our survey, we can assess and improve quality of arthritis care from the patient perspective.

What will be done?

We invite RA patients to test our survey online and participate in an online interview where you share your feedback. This feedback will help us improve the survey. Then we will test the survey by comparing survey responses to patient charts and/or electronic medical records to see how accurate our survey is. The results of this step will help us identify any areas for improvement.

Participation in this study involves:

  • Testing our quality of care survey online (15-30 minutes)
  • Participating in an online interview where you share your feedback about the survey (1-1 ½ hours)

You may be eligible if you:

  • Are 18 years of age or older
  • Have access to a device with internet

 

How do people get involved?

Your participation in this study is voluntary and there are no foreseeable risks that are associated with this study. You will be asked to fill out a consent form before participating.

 

Please contact us if you have any questions and/or would like to participate

Study contact:
Kiran Dhiman, Research Coordinator
kdhiman@ucalgary.ca

This study has been approved by the University of Calgary Conjoint Health Research Ethics Board (REB19-0677).

Who is on the research team?

Principal Investigator: Claire Barber, MD, PhD, FRCPC, Assistant Professor, Division of Rheumatology, Department of Medicine, Cumming School of Medicine, University of Calgary.

Co-investigators:
Cheryl Barnabe, MD, MSc, FRCPC
Glen Hazlewood, MD, PhD, FRCPC
Joanne Homik, MD, MSc, FRCPC
Diane Lacaille, MD, MHSc, FRCPC
Linda Li, BSc PT, MSc, PhD, FCAHS
Paul MacMullan, MD, MB BCh
Deborah Marshall, PhD
Dianne Mosher, MD
James Rankin, PhD, ACNP
Karen Then, PhD, ACNP
Karen Tsui, Arthritis Research Canada, Arthritis Patient Advisory Board
Kelly English, Arthritis Research Canada, Arthritis Patient Advisory Board

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