A new program to help you track and manage rheumatoid arthritis.
Study Title: Empowering active self-management of arthritis: Raising the bar with OPERAS (an On-demand Program to EmpoweR Active Self-management)
Principal Investigator: Linda Li PT, PhD; Professor, University of British Columbia; Senior Research Scientist, Arthritis Research Canada
Start Date and End Date: February 2019 – February 2021
Why do this research?
We will research an online intervention app called OPERAS (On-demand Program to EmpoweR Active Self-management) in community settings, in order to address a much needed but under-researched area in the current care for patients with rheumatoid arthritis (RA), namely active self-management. This project builds on a decade-long partnership between researchers, patients and clinicians to improve the health of people with RA. The research will address the following: Can an online program, combining symptom/disease activity monitoring and physical activity counselling by a physiotherapist (PT) improve self-management ability in people with RA?
What will be done?
After a baseline assessment, we will randomly assign participants to receive the program immediately or in 6 months. All will receive:
- an orientation to the OPERAS web app
- an education session about physical activity and
- a Fitbit Flex, which links to the app.
During their enrollment, participants will receive follow-ups from their study PT as well as follow-up assessments at baseline, six and twelve months.
Who is involved
The research is done under the guidance of patient collaborators including two patient leads, as well as ten core health and data scientists at ARC, UBC and SFU. The group is partnering with a Canadian health tech company, Tactica, based out of Manitoba to build the online program. The study will be aiming to recruit 134 people with RA who live in the Greater Vancouver Area, and who have daily access to the internet.
How do people get involved?
Once the study is underway the email contact information for the study coordinator will be listed here. Please check back to be part of this study. Recruiting announcements will also be sent out through our newsletter and our usual channels.
Johnathan Tam, Research Coordinator
Who is funding the research?
The Arthritis Society
Who is on the research team?
Diane Lacaille, MD, MHSc, FRCPC, Senior Scientist, Arthritis Research Canada; Professor and Associate Head Academic Affairs, Division of Rheumatology, Department of Medicine, University of British Columbia
Teresa Liu-Ambrose, PT, PhD, Professor, Department of Physiotherapy, University of British Columbia
Catherine Backman, PhD, OT(C), FCAOT, Professor and Head, Department of Occupational Science & Occupational Therapy, University of British Columbia; Research Scientist, Arthritis Research Canada
Chris Shaw, PhD, Associate Professor, Simon Fraser University
John Esdaile, MD, MPH, FRCPC, Scientific Director, Arthritis Research Canada; Professor of Medicine, University of British Columbia
Rob Petrella, MD, PhD, Professor, School of Kinesiology, Western University
Lynne Feehan, BScPT, MSc, PhD, Clinical Associate Professor, Department of Physiotherapy, University of British Columbia
Paul Adam, MSW, Rheumatology Liaison and Outreach Services Coordinator, Mary Pack Arthritis Program
Kimberly Miller, BScPT, MSc, PhD, Senior Leader, Clinical Education & Special Projects, Rehabilitation & Development Management, Sunny Hill Centre for Children; Adjunct Professor, Faculty of Health Sciences, SFU
Charles Goldsmith, MSc, PhD, Professor, Biostatistics, Simon Fraser University
Alison Hoens, PT, KB, BC Support Unit
Cheryl Koehn, President, Arthritis Consumer Experts