Access and Utilization of Healthcare for Rheumatoid Arthritis in Aboriginal People in Alberta
Why do this research?
Access to health services is a determinant of population health and is known to be reduced for a variety of specialist services for Indigenous populations in Canada. With arthritis being the most common chronic condition experienced by Aboriginal populations and causing high levels of disability, it is critical to resolve access disparities through an understanding of barriers and facilitators to care.
What was found?
We investigated Aboriginal people’s experiences in accessing arthritis care through the reports of 16 patients and 15 healthcare providers in Alberta, Canada. Semi-structured interviews were transcribed verbatim. The patient and provider data were first analyzed separately by two team members, then brought together to form a framework. The framework was refined through further analysis following the multidisciplinary research team’s discussions. Once the framework was developed, reports on the patient and provider data were shared with each participant group independently and participants were interviewed to assess validity of the summary. In the resulting theoretical framework, Aboriginal participants framed their experience with arthritis as ‘toughing it out’ and spoke of racism encountered in the healthcare setting as a deterrent to pursuing care. Healthcare providers were frustrated by high disease severity and missed appointments, and framed Aboriginal patients as lacking ‘buy-in’. Constraints imposed by complex healthcare systems contributed to tensions between Aboriginal people and providers. Low specialist care utilization rates among Aboriginal people cannot be attributed to cultural and social preferences. Further, the assumptions made by providers lead to stereotyping and racism and reinforce rejection of healthcare by patients. Examples of ‘working around’ the system were revealed and showed potential for improved utilization of specialist services. This framework has significant implications for health policy and indicates that culturally safe services are a priority in addressing chronic disease management.
- Contributes to the scant literature on patterns of healthcare utilization for arthritis care among Aboriginal people
- Reveals reasons for low specialist care-utilization by Aboriginal patients, driven by prior experiences of racism in the healthcare settings
- Shows how existing hegemonic assumptions around healthcare utilization can lead to stereotyping and racism
CIORA (Canadian Initiative for Outcomes in Rheumatology Care) and Osteoarthritis Alberta Team Grant (Alberta Innovates – Health Solutions).
Project Team Members:
Principal Investigators: Cheryl Barnabe and C. Allyson Jones
- Wilfreda Thurston
- Stephanie Coupal
- Lynden Crowshoe
- Deborah Marshall
- Joanne Homik