Participating in Research

Research ParticipationResearch study participants play a crucial role in arthritis research, and much of the research completed at the Arthritis Research Centre of Canada is made possible by the generous contribution of time by people like you. There are many opportunities for you to become involved; however, some patients are hesitant because they believe that all research studies are invasive. The truth is that some studies can be as simple as taking a survey, testing an interactive website or having a knee exam. And remember, your privacy and confidentiality are always protected.

Opportunities for you to get involved!

INFORMED

ANSWER-2: A biologic decision aid for patients with rheumatoid arthritis

The decision to start a biologic is not an easy one for people with rheumatoid arthritis, given that there are side effects, high costs and different ways of taking the drugs (e.g. by injection, as a pill) to consider. We have developed a decision aid called ANSWER-2 for people who are considering biologics. We would like your help to test this web-based program before it is available to the public. You may be eligible to participate if you:

  • Have rheumatoid arthritis
  • Are currently taking a biologic agent, or your doctor has recommended biologic treatment
For more information, visit:
Need help making a decision about rheumatoid arthritis treatment? Introducing ANSWER-2!


Contact:

Jasmina Memetovic:


ANSWER 2

Individuals Living with INFLAMMATORY ARTHRITIS

What are you experiences and opinions on medication taking?

WE WANT TO HEAR FROM YOU.

For many patients living with arthritis, medication taking is a part of everyday life. Dr. Mary De Vera, Assistant Professor at the Faculty of Pharmaceutical Sciences in the University of British Columbia, and the researchers at ARC are conducting focus group sessions to find out patients' experiences with medication taking. We also hope to gain opinions regarding strategies that may help patients improve medication taking.

Patients with Rheumatoid Arthritis, Lupus, Polyarthritis, Psoriatic Arthritis, Ankylosing Spondylitis and Gout who are 19 years old or older are being invited to participate in a 2 hour focus group session.

For more information about the study, please contact the research investigators and the research coordinator at 604 822 5697.


Virtual Gout

Virtual Gout Clinic

Gout affects over 1 million Canadians and is expected to increase with the aging of the population. Although appropriate gout therapy can effectively "cure" the disease, patients still experience continued poor outcomes. Researchers at the University of British Columbia and the Arthritis Research Centre of Canada in Vancouver are conducting a study to see if collaborative care between your rheumatologist, a pharmacist, and a dietician, with the use of electronic health technologies can better manage your gout symptoms. If you are followed by a rheumatologist, have received a gout diagnosis, and are 19 years old or older, you are being invited to participate in this one year study.


Contact:

Jessica Galo:


MABLab recruitment

Shoe Orthotics for Knee Osteoarthritis

Inexpensive and non-invasive therapies are needed to improve the pain and physical dysfunction known to exist in people with knee OA. One potential option is the use of shoe insoles (orthotics) designed to reduce the loads within the knee joint known to cause pain. Though different types of shoe orthotics exist, the effects of custom-made orthotics designed to match the specific shape of a person's foot in improving knee OA pain and dysfunction are unknown. The Motion Analysis and Biofeedback Lab at the University of British Columbia is seeking volunteers with knee osteoarthritis and flat feet to participate in a study assessing the effects of different types of custom-fitted shoe orthotics on knee pain and physical function.

For more information, visit:
Shoe Orthotics for Knee Osteoarthritis Study


Contact:

Natasha Krowchuk:


MABLab recruitment

Knee Osteoarthritis Walking Program

The Motion Analysis and Biofeedback Lab at the University of British Columbia is seeking volunteers with knee osteoarthritis to participate in a study assessing the effect of different walking programs on knee pain, knee joint loading, and overall physical function. Walking programs have been recommended for people with knee osteoarthritis to reduce pain and symptoms as well as increase mobility. These are inexpensive and noninvasive techniques that can be widely used. However, it is not clear how effective these programs are in altering other factors important to knee osteoarthritis, such as the loads that pass through the knee joint.

For more information, visit:
Knee Osteoarthritis Walking Program Study


Contact:

Natasha Krowchuk:


EULAR recruitment

Arthritis in the workforce: How do we measure success?

Inflammatory arthritis and osteoarthritis are disabling diseases for people of working age, and a large proportion of patients end up having to take time off or stop working completely. Those who continue to work may have difficulty performing their work and be less efficient than their peers. This can have a huge financial, social, and psychological impact on people with arthritis. In order to fully understand the impact of arthritis on work productivity, it is crucial that we are able to properly evaluate these outcomes. The overall aim of this international study is to evaluate questionnaires that estimate at-work limitations/productivity loss from a patient's perspective.

For more information, please see:

Arthritis in the Workforce


Contact:

Erin Carruthers:


FitBit recruitment

Staying Active in the Digital Age

Heard about Fitbit? Online pedometers? Exercise apps? A new study is recruiting people with arthritis to share their views on physical activity trackers. Taking part involves participating in a group discussion about these physical activity trackers and learning more about some of the most popular ones. No previous experience with using physical activity trackers is required. A small honorarium will be provided.

For more information, please visit:
Arthritis Care in the Digital Age.

Contact:
Jenny Leese:


AHJ recruitment

Arthritis Health Journal

People with rheumatoid arthritis (RA) who are actively involved in the management of their disease are much more likely to reach their health goals and effectively control their RA symptoms. The Arthritis Health Journal is an online tool designed to help monitor symptoms, track disease activity, and develop action plans to help combat arthritis. We are currently looking for people with RA to help test this newly developed tool.

For more information, please see visit the Arthritis Health Journal study.

Contact:
Erin Carruthers:


Making It Work recruitment

Employment and Arthritis: Making It Work

Do you have concerns about your arthritis affecting your ability to work? Arthritis is the #1 health condition causing Canadians to stop working. 1 out of 5 people with inflammatory arthritis is forced to stop working within five years of diagnosis. You can reduce your chances of having to stop working by making simple changes at work. The Making It Work program is a unique online eLearning program designed to reduce difficulties at work due to arthritis. If you have a form of inflammatory arthritis and you are working in paid employment, you may be eligible to participate in this study.

For more information please see the Making It Work project summary.

Contact:
Pam Rogers:


ehealth ethics E-Health Ethics

Researchers from the University of British Columbia and the Arthritis Research Centre of Canada are studying how people with chronic illness use online sources and mobile technologies for health reasons. In 2010, 70% of Canadian Internet users searched for medical or health-related information. For this E-Health project we are currently recruiting males and younger people aged 19 and above with inflammatory arthritis and at least one other chronic condition, as well as health care providers. We want to understand how new technologies affect health care decisions and interactions between patients/consumers and health care providers and identify any emerging ethical issues.

For more information: E-Health Ethics

Contact:

Jenny Leese:
ipart recruitment

IPART Study: Susceptibility Factors for Arthritis among Patients with Psoriasis

Researchers at the Arthritis Research Centre of Canada in Vancouver are conducting a study investigating why 30% of people with psoriasis develop arthritis. This research aims to identify key risk factors that will lead to early detection and improved treatments. It is unclear why certain people with psoriasis are at an increased risk of developing arthritis, and we need your help to conduct this research. If you have been diagnosed with psoriasis or psoriatic arthritis, you are eligible to participate.

For more information about recruitment at the Vancouver site:

Contact:

Sharan Rai: / 604-207-4033

"Disease chooses us. We do not choose disease. But we can choose how we respond to disease and the meaning we permit it to have in our lives. Participating in ARC research gives us a unique opportunity to put our arthritis diseases to work in the greater cause of immobilizing and defeating them, in the task of striving to wrestle them to the ground. ... it's hugely emotionally gratifying to feel that one can actually help to put arthritis 'on the run'!!"

Gordon Whitehead

"The researchers acknowledge and respect patients as the "experts" -- experts when it comes to understanding our disease. Whether I took part in interviews, completed questionnaires, or participated in innovative programs, the ARC researchers and research coordinators always fostered a welcoming atmosphere, one that enabled me to ask questions and express opinions without reservation. The experience gave me the satisfaction of knowing I was contributing to research projects that would help to advance the quality of life for those living with arthritis."

Nadia Prestley