Research study participants play a crucial role in arthritis research, and much of the research completed at the Arthritis Research Centre of Canada is made possible by the generous contribution of time by people like you. There are many opportunities for you to become involved; however, some patients are hesitant because they believe that all research studies are invasive. The truth is that some studies can be as simple as taking a survey, testing an interactive website or having a knee exam. And remember, your privacy and confidentiality are always protected. Listen to what these participants have to say …
"Disease chooses us. We do not choose disease. But we can choose how we respond to disease and the meaning we permit it to have in our lives. Participating in ARC research gives us a unique opportunity to put our arthritis diseases to work in the greater cause of immobilizing and defeating them, in the task of striving to wrestle them to the ground. ... it's hugely emotionally gratifying to feel that one can actually help to put arthritis 'on the run'!!"
"The researchers acknowledge and respect patients as the "experts" -- experts when it comes to understanding our disease. Whether I took part in interviews, completed questionnaires, or participated in innovative programs, the ARC researchers and research coordinators always fostered a welcoming atmosphere, one that enabled me to ask questions and express opinions without reservation. The experience gave me the satisfaction of knowing I was contributing to research projects that would help to advance the quality of life for those living with arthritis."
Opportunities for you to get involved!
Arthritis Health Journal
People with rheumatoid arthritis (RA) who are actively involved in the management of their disease are much more likely to reach their health goals and effectively control their RA symptoms. The Arthritis Health Journal is an online tool designed to help monitor symptoms, track disease activity, and develop action plans to help combat arthritis. We are currently looking for people with RA to help test this newly developed tool.
For more information, please see visit the Arthritis Health Journal study.
Employment and Arthritis: Making It Work
Do you have concerns about your arthritis affecting your ability to work? Arthritis is the #1 health condition causing Canadians to stop working. 1 out of 5 people with inflammatory arthritis is forced to stop working within five years of diagnosis. You can reduce your chances of having to stop working by making simple changes at work. The Making It Work program is a unique online eLearning program designed to reduce difficulties at work due to arthritis. If you have a form of inflammatory arthritis and you are working in paid employment, you may be eligible to participate in this study.
For more information please see the Making It Work project summary.
Researchers from the University of British Columbia and the Arthritis Research Centre of Canada are studying how people with chronic illness use online sources and mobile technologies for health reasons. In 2010, 70% of Canadian Internet users searched for medical or health-related information. For this E-Health project we are recruiting people with inflammatory arthritis and at least one other chronic condition, as well as health care providers. We want to understand how new technologies affect health care decisions and interactions between patients/consumers and health care providers and identify any emerging ethical issues.
For more information: E-Health Ethics
||OPEN Exercise Program
Using the latest digital media technologies, a new website called OPEN has been created to support people with knee pain in becoming physically active in a safe and sustainable way. Physical activity has been shown to reduce pain and joint damage, yet a recent survey conducted at the Arthritis Research Centre of Canada found that only 1 in 4 people in British Columbia with mild osteoarthritis symptoms met the recommended level of physical activity. We are recruiting 250 people with knee pain in British Columbia to determine whether using OPEN can help people to stay on track.
For more information: OPEN Exercise Program
Online Screening Questionnaire: OPEN Questionnaire
(Potential participants who complete the questionnaire will be contacted by a research coordinator to confirm eligibility and to tell them more about OPEN)
IPART Study: Susceptibility Factors for Arthritis among Patients with Psoriasis
Researchers at the Arthritis Research Centre of Canada in Vancouver are conducting a study investigating why 30% of people with psoriasis develop arthritis. This research aims to identify key risk factors that will lead to early detection and improved treatments. It is unclear why certain people with psoriasis are at an increased risk of developing arthritis, and we need your help to conduct this research. If you have been diagnosed with psoriasis or psoriatic arthritis, you are eligible to participate.
For more information about recruitment at the Vancouver site: