The Arthritis Patient Advisory Board (APAB), formerly known as the Consumer Advisory Board (CAB), is comprised of volunteer advocates with arthritis who bring personal experience and arthritis knowledge to research decision making at Arthritis Research Canada (ARC). Their goal is to ensure the patient perspective is represented on research matters related to prevention, treatment and self-management of arthritis. Individually and collectively, they communicate research information and findings to arthritis patients, professional organizations and the general public.
APAB participates in all components and phases of arthritis research and serves as a bridge between researchers, people with arthritis, and the community at large.
APAB partners in research to create a future where research-based services, tools and knowledge empower people living with arthritis to triumph over pain and disability.
Core Strategic Areas:
- Knowledge translation
- Community advocacy
- Government relations
- Promotes the understanding of patient needs and concerns through active collaboration with researchers at Arthritis Research Canada (ARC).
- Coordinates annual or bi-annual ROAR (Reaching Out with Arthritis Research) events, providing an opportunity for the arthritis community to learn about and discuss the research being conducted at the Arthritis Research Canada (ARC).
- Engages in the worldwide exchange of knowledge and skills
- Involved in preparing and editing the Glossary of Terms and Acronyms Used in Health Research: A Consumer's Guide
- Created the Arthritis Lifestyle Management Guide, a compilation of techniques that may be used to cope with the everyday challenges faced by people living with arthritis
- Designed the Lay Research Summary Template for researchers to communicate the key messages from their research to the general public
- Publishes a quarterly Arthritis Newsletter that aims to keep the public informed of advances in arthritis research and share stories and perspectives on living with arthritis
- Participates in social media as part of the goal to bridge the gap between researchers, patients and the larger community
You are the BEST. It is incredible the difference you make for ARC but also for Canada. You have made APAB a national resource.
Dr. John Esdaile, Scientific Director, ARC